A Journey Begins
In 2016, with growing concerns about Maison (4) being a late speaker, Lexy took him to see an occupational therapist. The therapists visual observation of Maison was all she needed to advise Lexy that her son was indeed on the spectrum, and that he needed further assessment.
Lexy approached a remedial school in Johannesburg in 2017, asking to have Maison assessed. It was the next year when they received the report that officially diagnosed her son with high functioning autism, ADHD (attention deficit disorder with hyperactivity), and apraxia of speech.
As parents, we understand the hardships, sacrifices, and challenges that come with our duty.
However, there are occasions where we have to rise over and above in order to achieve what’s best for our children. Lexy’s journey with Maison is a perfect example of this. She has been battling with SA’s education system for years, and for nothing else but the most basic human rights her child deserves.
Coming to terms
Lexy was understandably heartbroken by the diagnosis. Although she always had a feeling that Maison was on the spectrum, it was particularly difficult to watch him undergo the assessment. Watching her son fail at things that other children his age could accomplish was especially hard. It came with a realization that although she understood Maison and his non-verbal ways perfectly well, her son would have to grow up in a world bigger than the one he was in. He would have to learn skills to successfully navigate that world and the people in it.
The therapist was kind and sympathetic, assuring Lexy that Maison would be just fine.
He would need medication to help him focus, as well as therapy. She also advised Lexy to start looking at remedial schools. This would prove to be the beginning of an arduous process. Because of Maison’s non-verbal traits, he would have to be assessed to see whether he was eligible to attend a particular school or not.
Down The Rabbit Hole
Lexy began in earnest, researching every private school in the surrounding area. Needless to say, she was let down each time. This was mostly due to the high fees in question. She then accepted that her only option would be to find a place for Maison in a government remedial school. However, the search for placement quickly became one of the hardest things Lexy has had to do. Starting in 2017, she has fought with heads of schools, the district office, and the department of education. And even now, in 2019, the process is still ongoing.
The story so far: A psychologist at the district office supplied Lexy with a signed document to have Maison placed in a school by 2020 (hopefully). This was not a guarantee, but simply added Maison to a waiting list in the hopes that he would be enrolled in a remedial school most suited to his needs. He is also a candidate at a new school for autistic children which was opened by a mother frustrated by the fact that she couldn’t find placement for her own son. Conversations with the Gauteng department of education and therapists at remedial schools in other districts have all come to nothing.
Up to this point, Lexy has had to keep hearing over and over from several potential schools that either her son was “too disabled” or “not disabled enough”. And as much as people in high places all agree Lexy and Maison’s case should have been handled better, no strides have been taken to correct this at all. Not even social media – a platform that has brought about revolutions in some countries – could help the situation. So far, all of Lexy’s endless efforts have come to nothing.
